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I Am So Sick of Being Sick With Fibromyalgia Disease

Author: Cat (Contributor at theMighty.com)

Having a chronic illness such as Fibromyalgia Disease really does take its toll on you, especially when you have a ton of other stuff along with it like me. It waxes and wanes but it never goes away, at least it doesn’t for me. Right now I must say it’s as bad as it has ever been before. My Fibromyalgia Disease pain level has driven me so far down that even my positive outlook is suffering. I am so sick of being sick with Fibromyalgia Disease. My only escape is the sleep I get but now the Fibromyalgia Disease pain is twisting my dreams and I can’t even escape it there now. I awake so sore that it makes me want to scream out just to move. I’m as tired when I wake up as I was when I went to bed. Relief seems to be escaping me these days.

Get more exercise, that’s what they say. They have no idea how hard that is to do when every movement makes you want to flinch with Fibromyalgia Disease pain. When walking any distance at all makes your spine feel as though it’s just going to crumble apart and disintegrate. I do what I can, I walk short distances, I do leg lifts in my chair, but it’s hard. I wish others could understand how hard. Lose weight. I try, I really do. Without being able to be as active as you need to be it’s a very hard thing to do. I know my weight, which was put on after falling ill, makes it worse. It makes my self-image worse too which doesn’t help things at all. I wish I could lose it and I’m trying hard to, but it’s a slow process feeling as I do.

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Take your meds. I do, I promise I do, just as they tell me to do, but it isn’t helping enough. I have missed them and I was lucky not to spend the day curled up in a ball on the floor, so I know they help, but they aren’t doing enough. There has to be something out there that will help give me my life back. Depression? Sure, I struggle with depression. When there isn’t a part of your body that doesn’t hurt all of the time, you might be depressed too. I think those of us who function with this are a lot stronger than people give us credit for.

I can’t even eat without experiencing symptoms. I eat something, it sends me running to the bathroom. There isn’t an aspect of living that Fibromyalgia Disease or the slew of co-existing conditions do not touch. You name it, there is an ill effect to go along with it. The symptoms feed off each other, each one causing the others to be worse. I try to stay positive. I know this will pass and I will feel better, but even then I won’t feel good. I have my good spells but even then there is still the ever-present Fibromyalgia Disease pain, depression, stomach issues etc. Still, there are better times when I can do more and enjoy more, but what do I do in the meantime? I’m getting worn down, physically, mentally and emotionally. I’m losing hope that there are good days ahead and that relief can be found. I mustn’t let myself get like that, I must always believe there is hope, but right now that’s hard. I must hold onto the thought that this too shall pass. I just hope it passes quickly.

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5 Responses

  1. Larry Griffiths says:

    Try some hemp oil and some MSM for muscle soreness.

  2. Candy Walsh says:

    I could’ve written this myself, word for word. I hope you have a good holiday season and know there is always hope.

  3. sofia Kyriacou says:

    Dear fellow sufferer,
    I hear you loud and clear. I say the same bloody thing EVERYDAY. I have had Fibro for 15 years now and have tried pretty much everything. Im in Australia and we dont have any of the Cannabis products that so call help. They are probably the only thing I havent tried.The best thing I can say is have FAITH, try and stay as positive as possible(I know its hard) even if you ly to yourself, fool your brain your happy,HANG IN THERE, you/we are tougher than this bloody disorder/desease or whatever the [email protected]#k they want to call it. By your side

  4. Kathy Whittle says:

    Just reading this lifted my spirits. I honestly thought I was alone in this devastation and the variety of symptoms that rear their ugly head. Thank you for expressing yourself so well.

  5. Holly says:

    I suffer from everything you mentioned. I recently started adding D-Ribose to my tea and hopefully it’s not a coincidence but my pain has significantly decreased. This leads me to believe that I’m not processing carbs/sugar like I should… all I know is that it helps and when I don’t take it, it’s very noticeable!

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