16 Ways to Imagine What Fibromyalgia Disorder Feels Like

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4 Responses

  1. Sandy says:

    Most of these are good but I really have a problem when people say things like, “the worst flu you’ve ever experienced, and pair that with falling down three flights of stairs, straight into a beehive” or feeling like they’ve been hit by a truck. There’s a slim chance that anyone has had the worst flu and fell down three flights of stairs into a beehive so using that as an example makes more people doubt the severity of what we’re feeling.

  2. CarCrash says:

    Every single one of those symptoms are horrible, debilitating, depressingly constant yet invisible. They are though also in fact, classic symptoms of Lyme disease. Fibromyalgia has no test and no results…just the patient lists the symptoms and gets told it’s fibro. I don’t think that’s good enough.
    Anyone with these symptoms, get your bloods sent to Armin Labs in Germany for Lyme and co-infection testing and if the tests come back negative then explore other avenues. Your body is crying out in pain and flu-like symptoms for a reason!
    Kindest regards. ❤️

    • Lorna says:

      I have explored every avenue available over 30 yrs since I was diagnosed with this. I wish I could put a picture here of my hands and legs & feet. my palms are beet red and it’s been like that from the beginning but every time I said something about it 17 diff specialist & Dr’s said oh that has nothing to do with it. But they have no clue what so ever what causes it . Just recently I read an article stating that they have discovered it starts in the hands nerve endings. So apparently I was right all these years but still no info on why , what , or cause or cure for it.

  3. Merle Walker says:

    My FM is hereditary. My grandmother wore slippers because of sore feet & passed away from septacemia of the face. I have giant urticaria episodes (almost whole body, looks like I have facial cancer), & almost all of the symptoms. My fathet also had many of the symptoms. My daughter has also been diagnosed with FM plus quite a few other things. I also have lupus.

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